This item is to discuss Sindi Keesan's illness.  She received a 
preliminary diagnosis of lymphoma of the spleen.

257 responses total.

Hope she gets well soon .

I hope this is not true.  However, even if so the spleen is fortunately
something that folk can live without quite easily.  If so, she shares a
rare illness with the last shah of iran.  Personally, I thought this was
a disease that primarily occured in canines which is why I first
suspected jep is joking.

Actually, I know quite a few humans who have, or have recovered from,
lymphoma. 

I suspect pvn is alluding to lymphoma of the "spleen" as being more 
rare. 

I am not joking.  Sindi entered some responses about it in the bummed 
item, and requested another item be created for her.  She's said there 
she weighs about 95 lbs now; down 20 pounds from a few months ago.

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We were treated for lymphoma from 11/2001 - 5/2002.  It was limited, 
though, to the upper chest.  We would be glad to share our experience 
with Ms. sindi, but she has chosen not to read our postings.

We?

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The Lymph System does indeed involve the spleen.  The spleen is one of 
the primary "cleaning" sight for your blood.  It will clean out any 
dead, weak, or damaged red blood cells and white cells.  It is also a 
storage sight for various types of white blood cells.  The spleen is 
important, and if a person has their spleen removed, they must be 
careful to not get sick, and typically on antibiotics to help their 
body fight off basic germs.

Re 9> I haven't noticed, does he do that all the time?

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we is leeron and its imaginary friend, klg.

We beg your pardon, Ms. oval!  Our existence is entirely independent.

Re #9: Multiple personality disorder?

<rotflmao @15.  "*Our* existence is entirely independent?">

Re #7:  Email would work.

Best wishes to Keesan.

My father recovered from lymphoma. After recovering from cancer. Try keeping
your spirits up!

ya good luck sindi

re:  "#18 (remmers):  Re #7:  Email would work."

Is there a Grex "Health" conference, or something like that for the 
discussion of such issues?

Indeed there is Health conference, although it's pretty dead.

        Best wishes on recovery, Sindi.

Indeed.

Thank you, Mr. scott.  Item # 85 in "Health" is for the discussion of 
lymphoma.

Turns out I'm fairwitness in that conference.  Want me to just link this item?

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Thanks, Scott!

It is a specialized discussion item pertaining to "health."  Please 
just keep it there.  Thank you.

Re 29:  Er, is that a "yes" or a "no"?  I can link it, but I can't control
its existence in Agora, since I'm not a FW in Agora.

Does anyone else find the comment in #22 ironic?

re resp:30: Scott, why does klg's preference matter?  I created this 
item, at Sindi's request.  I'd appreciate having this item linked to 
health because I think Sindi would appreciate it.

No offense meant to klg!  But I wouldn't think any user could come 
along and veto a request to have an item linked.

Was that a veto or merely a response to a question?

Why not have a single conference instead of sorting them by subject 
matter?

New linked to the Health conference as item 86.

U of M, PPOM, all kinds of fun insurance words.  Sindi, make sure you read
all your bills--insurance billing often works like a charm.  The more bills
go out, though, the greater the chance that something will go horribly wrong.
Keep your eyes open.

Re #10: usually the liver eventually takes over the function of the spleen
after the spleen's removal, so antibiotics and stricter avoidance of
infection are only needed temporarily. 

Lymphoma is a cancer of lymphocytes, which can be confined to a single
lymph node or can spread throughout the body to almost any organ. One of
the functions of the spleen is to produce lymphocytes, so it is not
surprising that it could be a site for lymphomas.

Here is a summary.  Add to that CT scan at 8 (can't eat first), bronchosopy
tomorrow (cant eat after midnight) something like prednisone and transfusion.
Heart scan, catheter maybe tomorrow.  The steroid is supposed to keep me
awake.


Hi. They sent me home Wed. from the spleen biopsy with a temp of 101 after
a Tylenol (it was 102 ).  After two days of severe pain at the biopsy site
I called to ask about a pain killer and my fever.  They said to go to the
emergency room.  I called my friend who is a doctor.  He prescribed
Tylenol with codeine and the next day put me in the hospital.  You cannot
sleep more than 1/2 hour in the hospital.  The first night (11:30 to
12:30) they drained 2 liters of fluid from one lung (just as much left). 
They had taken chest x-ray s but took another at 1:30, after which someone
kept coming in to take vitals on me and my roommate, 1/2 hour apart.  I
have a high pulse rate and still am not breathing deeply.  Lots of blood
samples, IV with saline and antibiotic.  This morning I got to sleep a
bit.  They just did a bone marrow biopsy and next is a CT scan of the
chest and a transfusion and prednisone and supper (can't eat for a while). 
Jim has been bringing me useful objects such as a kitchen chair and now a
computer for email. 


I am writing you all at once as this is a really awkward setup.

Tomorrow a catheter.  They will get bone marrow results and maybe start
chemotherapy.   I have to eat more but they don't let me eat before CT.

My just-left roommate had severe psoriasis.

This is b-cell lymphoma and ifit has not spread should be treatable.
Nothing feelable in the upper lymph nodes.

It is sort of nice here.  Someone chose my vegetarian food for the first
day.  Breakfast - zero fiber.  Soy milk, juice, rice krispies, melon.

A big insulating cover over the entree - one hard boiled egg.

They brought me a pasty bagel which Jim ate and prune juice and a cheese
omelette.

Lunch (marked vegetarian) was chicken and stuffing and corn and potatoes
and iceberg lettuce.

Supper was vegetarian.  One slice of white bread.  One iceberg lettuce
thing.  The covered entree was thawed green beens.  They added beets for
me.

Saturday supper was enormous:  green beens with tofu-spaghetti sauce which
Jim ate because it was full of black pepper.  They brought me a
replacement with plain spaghetti sauce.  A mashed potato.  Potato salad
which Jim ate.  Pasty roll which nobody ate.   Canned peaches.  Milk.   A
mixture of sugar, cinnamon and a bit of cooked apple which Jim ate.

I got to choose shredded wheat today.  They are providing snacks too.  Got
to get back 10 pounds.

Tomorrow they put in a catheter and maybe start chemo.  Need more test
results bac

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re:  "#35 (senna):  Sindi, make sure you read all your bills"

Good advice, normally.  But impractical.  First, because there are so 
many.  Second, because reading bills is the last thing someone 
undergoing treatment would have interest in.



Bone marrow biop.  Boy, that sure was fun!!  Too bad the sedative didn't 
kick in.

Had a thoracentesis, too, a couple days before chemo started.  Looked 
like Old Faithful.

Important to eat a lot - especially fattening foods.  Lost sense of 
taste and desire to eat.  Dropped from 178# to about 152#.  There are 
books of what to eat when you don't feel like eating and there are 
nutritional supplements, neither of which were especially appealling.

A month after chemo started developed a blod clot in r. calf. Probably 
due to inactivity.  (Never felt so tired.  Even sleeping 12 + hrs./day.) 
Spent New Year's Eve in the hosp.  Confined to bed with a heparin drip. 
Ask the dr. about starting on blood thinners now.

Suggestion:  Cut your hair real short.  Wasn't fun to have most of my 
hair circling the shower drain.  (Took about 2 cycles before it fell 
out, though, and never lost it all.)  One bonus, some hair grew back on 
top of head where there wasn't any before the chemo.

Are you reading this or are you still blocking my responses??

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