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Grex > Agora56 > #142: Grangers child has a non cancerous tumor | |
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granger
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Grangers child has a non cancerous tumor
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Mar 2 02:09 UTC 2006 |
Mary and mines child has a tumor.
Many of you have known us and been our friends.
If you feel like praying, thats fine.
If you just wanna wish us a good feeling, thats fine too.
He is only 2 years 8 months. Its not cancerous but he will require chemo.
Thanks grex.
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| 31 responses total. |
scholar
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response 1 of 31:
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Mar 2 02:34 UTC 2006 |
What are you supposed to do when someone who was always a dick to you (and
signed you up for all sorts of silly E-mail lists) and who you think is a
jackass has a kid with a serious medical problem?
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granger
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response 2 of 31:
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Mar 2 02:39 UTC 2006 |
https://www.fundable.org/groupactions/groupaction.2006-03-01.7654882828/gr
oupa
ction_view
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granger
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response 3 of 31:
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Mar 2 02:39 UTC 2006 |
i guess you ignore this post
from my perspective i dont know who you are and never talked to you
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mcnally
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response 4 of 31:
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Mar 2 03:22 UTC 2006 |
re #0: That must be awful news to face. Take heart from the fact that
the field of medicine is advancing pretty quickly and depending on the
cause of the tumor there might be quite a bit they can do about it..
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scholar
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response 5 of 31:
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Mar 2 04:35 UTC 2006 |
Re. 3: Maybe you have a tumour in your brain. :(
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naftee
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response 6 of 31:
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Mar 2 05:35 UTC 2006 |
re 1 you hope his child won't turn out like that.
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tod
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response 7 of 31:
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Mar 2 06:21 UTC 2006 |
Best wishes to your son, your wife, you, and the rest of your family.
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twenex
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response 8 of 31:
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Mar 2 12:40 UTC 2006 |
What tod said. That's dreadful.
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jep
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response 9 of 31:
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Mar 2 14:20 UTC 2006 |
Sean, best wishes to your son, and to you and Mary as well.
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jep
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response 10 of 31:
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Mar 2 14:21 UTC 2006 |
Sean's link (a donation fund raiser) can be reached at:
http://tinyurl.com/jwvhd
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keesan
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response 11 of 31:
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Mar 2 15:43 UTC 2006 |
Sean, do you mean by 'non-cancerous' that is it not malignant (meaning it is
not the sort that spreads)? When I had chemo in 2003 there were several small
children also being treated and they were all doing quite well. Children's
immune systems rebound much faster than adults', and they have the advantage
of not really understanding the details so not worrying so much. Do you want
to let us (or me by email) know the type of tumor and chemotherapy? I have
a biochem background and could do some online research for you.
Children tend to have higher cure rates for many types of cancers, because
of their strong immune systems.
But I am sure you are feeling awful about this. Talk to the parents of other
children who have had similar treatment. It really helps to know what to
expect, and that other people have survived and recovered from even worse.
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nharmon
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response 12 of 31:
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Mar 2 15:56 UTC 2006 |
Sean, the last few years have been rough on you bud. Hang in there! We
hope the best for you and your's!
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slynne
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response 13 of 31:
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Mar 2 18:35 UTC 2006 |
Yes, I certainly hope for a good prognosis for your little one.
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happyboy
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response 14 of 31:
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Mar 2 18:46 UTC 2006 |
amen.
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jadecat
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response 15 of 31:
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Mar 2 19:23 UTC 2006 |
Good thoughts for your family, and a speedy recovery for your son.
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keesan
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response 16 of 31:
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Mar 2 23:07 UTC 2006 |
There are many online informational and support sites. Cancer Survivors'
Network has a sort of bbs. www.csn.org (net?)
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granger
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response 17 of 31:
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Mar 3 04:18 UTC 2006 |
As far as what I have been told this is not cancer, but benign.
Today we tried to get him in for a cat scan but he freaked out wanting food
I take comfort in what you are saying regarding he wont worry and his immune
system will bounce
i was at the hospital from 2pm to about 9pm, and the entire time it was just
nurses,
I have asked for something in terms of what a piece of paper with what the
tumor was and what type of chemotherapy he is going to get,
cause i wanna be able to research it and share with everyone
I think so far the website has raised 70 dollars, and even if you cant give
if you say a good word in your heart that someone who can spare will thats
cool, i read today that we dont neccessarily need to reach the goal that even
if we are short we would get the pledged amount
i choose 2000 as a goal cause thats the deductable we will have to pay the
hospital
i think hospitals have payment plans so well pay what we can over time
i think ultimately there will be a good result, theres a struggle ahead of
us to get there
thanks to everyone for keeping us in your hearts and prayers
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keesan
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response 18 of 31:
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Mar 3 04:37 UTC 2006 |
U of M Hospital is said to be very reasonable about payments. They said I
could be a few months late with mine, no problem. Is this something
abdominal? That would explain why no eating or drinking for 6 hours before
the scan. It might help to schedule first thing in the morning. They make
you drink a barium sulfate suspension ('fruit flavored') which provides
contrast so they can see what is where. By 'benign' I think that means it
has not spread, and the chemotherapy should get rid of it before it has a
chance to do so and also be insurance in case a few cells did spread.
Tumor actually just means a swelling, but swellings are not treated with
chemotherapy if they are not cancer, I don't think. Get something on paper.
The nurses at the U of M cancer center were really nice to the kids there,
and they may have a separate room for them to get infused. They have a
special waiting area for kids with toys and books and a big fish tank, and
there are usually 2-3 kids there. In the infusion room there is a place for
visitors/relatives to sit with the patients, and free juice and bagels and
coffee. TV for each chair with private little speakers. You might get your
kid to mostly enjoy the experience, but there is the little problem of them
sticking an IV in your hand to run the chemicals through. In most cases it
takes only an hour or so. I went 8 times in 6 months. You feel tired for
a week or so afterwards. I was never nauseous, they give anti-nausea drugs
just in case.
'benign' is very good news.
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glenda
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response 19 of 31:
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Mar 3 14:55 UTC 2006 |
Benign means NOT cancer. Malignant means cancer. Metastasize means cancer
that has spread.
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keesan
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response 20 of 31:
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Mar 3 15:14 UTC 2006 |
Webster: cancer - a malignant tumor. tumor - an abnormal mass of tissue that
is not inflammatory, arises without obvious cause from cells of preexistent
tissue, and possesses no physiologic function. It can also mean a swelling.
Even if a tumor is not malignant (spreading to other parts of the body) it
can continue to grow and cause pressure and pain. Sometimes they are removed
surgically, followed by chemo and/or radiation.
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granger
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response 21 of 31:
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Mar 3 22:47 UTC 2006 |
I was told today he has hystiocytsis
and so we are taking it one day at a time
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granger
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response 22 of 31:
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Mar 3 22:48 UTC 2006 |
sorry, that he had a hystiosystosis tumor
so i dont know it sounds serious but the doctors say he will be fine
so we are confident just scared
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tod
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response 23 of 31:
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Mar 3 23:56 UTC 2006 |
Histiocytosis X?
Hang in there. It has to be scary as hell so feel free to vent.
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granger
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response 24 of 31:
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Mar 4 00:27 UTC 2006 |
i have no idea i am waiting for something in writing cause i havent talked
to a doctor
im at the hospital they gave us a computer in his room
the nurse just put him on another round of anti biotics but he ate like a
bunch of hospital food today and yesterday
so we dont know if he is going to get radiation treatment but the chemo is
definate
im not worried about it as much cause I guess its better now than it used to
be years and years ago
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